After attending Jordan World Circus, thanks to the Starlight Children's Foundation, @ the Puyallup Fairgrounds...Summer LOVED the ponies, elephants, and especially the high flying acrobatic Ariel princesses (her favorite...she kept saying "printhess, ahh, ahh, ahh (like Ariel's singing) 3-12-2011

Tuesday, September 29, 2009

Squeeky wheel gets the grease...or the formula in this case :)

Two weeks ago at clinic we decided to increase Summer's formula to 65 ML's per hour. I asked the doc to tell me how much more we needed in order for her IV to no longer be needed? He said if we could get to 85-90 ML's per hour at her current weight and condition, the need for the extra nutrients from the TPN/IV would be gone! Of course, being the scheming type of person that I am (only good schemes usually involving some sort of vacation my hubby doesn't want to take, haha), I started planning out in my mind how to get this accomplished ASAP.

I jokingly told the nutritionist that in two weeks I would call her and get permission to increase Summer's formula again.....she chuckled and said "we'll see about that". Well, today marked two weeks....I actually called yesterday. Summer's bum, which is usually very red, blistered and rashy, (from the liquid diet and the usually constant diarhea) has been crystal clear for over 2 1/2 weeks now! This is a new record for her :) One of the big signs of her body not tollerating the amount of formula we give her is the rashes and/or skin breakdown from the loose stools. I figured it was safe to ask, so I did....they said, YES :) I turned her formula up to 70 ML's per hour and she seems to be doing just fine :) In fact, in the past few weeks, she has gone for 5-6 hours during the day without any stools....again, a record....she used to poop at least 10-12 times daily!

To sum up, she is at 70 ML's per hour and needs to get to 85-90....we have clinic in 2 weeks where we can hopefully up it another 5 ML's, making it 75...then 2 weeks later, another 5, and 2 weeks after that, another 5, making 85.....this is my plan....hopefully Summer's bum cooperates :)

I can't wait to get that IV out of her body.....I feel sad every time I see her belly and chest with all the hubby just reminds me it is better to have the scars than to not have her! Amen! :)

Cute bath baby... my sister found this tub for Summer...perfect for the non-water-proof baby :)

Here's a recent photo shoot....I took Senior pictures for 2 friends' daughters last week and stuck some in for Summer too :) They were taken at Bellevue Botanical Gardens.

Look what I found in the garden! These definitely need fairy wings :)

BreAnna took a break from smiling and hoisted Summer up in the flowers :)

Thanks to Hannah standing behind the camera for this one :)

Frogs, always a must :)

1 comment:

  1. congrats on the clear bum and the formula increase! Those photos are beautiful.