After attending Jordan World Circus, thanks to the Starlight Children's Foundation, @ the Puyallup Fairgrounds...Summer LOVED the ponies, elephants, and especially the high flying acrobatic Ariel princesses (her favorite...she kept saying "printhess, ahh, ahh, ahh (like Ariel's singing) 3-12-2011

Tuesday, February 9, 2010

Lookin' Good!

Summer is really loving her baths!

This week has been very busy with lots of appointments. Summer saw the surgeon yesterday and all looks good. Her incisions are healing nicely and the G tube is working well.

Today we met for the first time with her new feeding therapist. They put her in a highchair fit with a foam insert to give her good mid-section support. They feel she she will be able to focus better on eating if she isn't constantly trying to steady herself. The minute she sat down with all the supports, she was excited about the food in front of her. She grabbed at things, put them in her mouth, and even chewed a little. The therapist was very impressed that a baby with her medical history could do so well orally at this point. She kept congratulating me on a job well done and said Summer was a real "wow"! This was a great makes me feel like Summer really will do well quickly :)

The next appt. was with the Opthomologist. I was worried that Summer's eyes were getting worse....but I was wrong. :) Her eyes have been turning in a bit here and there, but we have noticed for the most part, they are tracking together well. After the eye exam, she told me she was very happy with Summer's eyes. At the last exam, her left eye was testing better than the right at 20/94. Today, they both tested at 20/130...though technically, this shows her eyes to be getting "worse", this is actually better! 20/130 is still well within the normal vision range for a baby Summer's age. And, both eyes are testing the same...that means her left eye is no longer dominant, causing her right eye not to work as hard, resulting in a decrease in vision. Yay! No more patching needed! Phew.....patching has been very challenging with Summer's recent sicknesses and the tape on her cheek from the NG tube. She also hated the patches and would scream and cry and rip them off anyway..... I told the doc this was a huge relief and she told me maybe this was just for me....something I needed. Amen to that!

Good news is always so's so nice to have 3 bits of it in a row :) Thurs. Summer has an appt. with the GI clinic....we will discuss her new eating habits with the nutritionist and where we go from here.....

Tubby time hair!

The only way to achieve curly hair on this kid is with lots of shampoo ~:)

Sweet, sleepy baby --

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