After attending Jordan World Circus, thanks to the Starlight Children's Foundation, @ the Puyallup Fairgrounds...Summer LOVED the ponies, elephants, and especially the high flying acrobatic Ariel princesses (her favorite...she kept saying "printhess, ahh, ahh, ahh (like Ariel's singing) 3-12-2011

Thursday, January 28, 2010


Every month we have a certain week we are supposed to order feeding supplies for Summer to last the next month. Well, this is our week to do it....when I checked the cabinet that we keep her formula in, I discovered something odd. They normally send us 19 cans a month to take care of the amount she drinks, but I still have 17 cans in there! Wow....have I not been feeding her? That is obviously not the case, just look at those thigh rolls :) This has been happening most months, but it is usually not this many cans. I have just been dismissing it since whenever we go in to the hospital for a few days, which we have several times in the past few months, the formula sits her accumulating.

OK, so bad mommy! I thought 17 cans might be a little ridiculous, so I called the nutritionist to double check our recipe. Sure enough, I have been mixing the formula wrong for 15 months! Doh!! Usually, when making a formula bottle, most people put in the amount of water they need, then the scoop of formula, and mix. I have been doing this. Well, for Summer's recipe, I am supposed to add the formula first, then water to the amount I need. This, of course, makes a huge difference in water volume! Her formula has not been as concentrated as it should be, so she is being pumped full of lots of extra water she doesn't need.....and I have wondered why her diapers are the way they are?

So, live and learn. Perhaps this was divine intervention of some sort....maybe the extra water helped her along faster than they thought she would? Who knows. We started mixing it right yesterday and her stools have already slowed down :) :) :) This, is a good thing!

Yesterday Summer started getting a diaper rash again. Not happy about this! She has gone 4 months rash free... The poor little thing was so sad, I left her little bum hanging out most of the day to try and air it out...this does not make for a happy baby. And, not to mention the lovely mess it creates. Ah well, I guess with the good comes the bad at times....All the successes were maybe too good to be true.

Still, her Broviac is gone, the nose noodle is gone, and the G tube has been working/healing nicely. Her incisions are looking good too. Today is one week from surgery, so tomorrow is bath time! Good thing....maybe it will help her rash to soak a little :)

We are really loving our tape less faced girl :) It's even hard to compare how she looked with the nose noodle already!

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