After attending Jordan World Circus, thanks to the Starlight Children's Foundation, @ the Puyallup Fairgrounds...Summer LOVED the ponies, elephants, and especially the high flying acrobatic Ariel princesses (her favorite...she kept saying "printhess, ahh, ahh, ahh (like Ariel's singing) 3-12-2011

Sunday, November 29, 2009

Latest (AND GREATEST) News! :)

This was so cute, I couldn't resist :)

Last week Summer had an appt. with the nutritionist in the GI clinic. She woke up that morning throwing up, so I was worried what the outcome would be. Lately, and always the day after she has skipped TPN overnight, she has had a day here and there where she throws up quite a bit. She was going in for a weight check, so didn't think the barfing would help...turns out, the throwing up is due to the lack of acid reducers running through her system, so we are giving them to her daily now...small price to pay :)
Fortunately, Summer still gained enough weight to make the nutritionist happy! She now weighs 20 lbs. 3 oz. :) This was a weight gain of 4 grams per day over a 2 week period. Since she performed as they were hoping, the nutritionist ok'd dropping the TPN to only 4 days per week! This, of course, means only 4-12 hour sessions :) She also ok'd a formula increase to 90 ML's per hour (Still 24/7)...this is only 5 ML's from her goal now! Wooo hooo! By this coming Wed., as long as Summer is still tolerating her formula at that rate, we will increase it to 95 ML's and run it for a week until her next clinic visit. The nutritionist was very happy with Summer's we are too, of course! She was pleased that this process has gone quickly, and has been fairly set-back free :)
I can't believe we are so close to chucking the IV....can't wait too!
Sleepy girl...she pulled out her tube...I pulled out the camera :)

Summer is very ticklish...she has the best giggle!

Shopping the Black friday ads is hard work!

Since her surgery, Summer's eyes have gotten straighter every day...she looks great :)

These socks have fit her since she was newborn...we are almost ready to retire them.

I love her cheeks :)

Summer on Thanksgiving hubby hates the "Whoo" hairdoo...I love it :)

Caught in the act of playing with her food....good job Summer! As part of the feeding therapy (to teach her how to eat solids), we are to let her discover and play with her food. She seemed to really love that idea with these mashed potatoes...

Yummy Thanksgiving dinner!

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