After attending Jordan World Circus, thanks to the Starlight Children's Foundation, @ the Puyallup Fairgrounds...Summer LOVED the ponies, elephants, and especially the high flying acrobatic Ariel princesses (her favorite...she kept saying "printhess, ahh, ahh, ahh (like Ariel's singing) 3-12-2011

Thursday, March 5, 2009

Checkup re-cap

My beautiful girl! She pulled out her NG tube again, so I snapped some more pictures :)

This Tues. we spent another day at Children's for several appts. First on our list was lab work. Every time we go in Summer has blood drawn from her IV for labs. I am usually late to this appt. but they are flexible and it gets me on time for clinic...ah, someday I will be prompt, maybe.

Summer's eyes are dark blue, they match this denim dress :)

Next, Summer had an Echocardiogram. She has had many of these as they are watching her lung disease. Preemies often have immature lungs and she developed Pulmonary Hypertension (that's why she was on oxygen until the first of Jan). As of Jan. 2, 2009 she looked great, so they weaned her off the oxygen (phew, that was HUGE for all of us!) This Echo was a follow up to make sure her lungs were still in good shape after being weaned off the oxygen.

After the Echo, we went to see the Pulmonary team. The doc reviewed everything, checked her lungs and asked me a bunch of ?s. He was very impressed with her progress and commented that he felt like the Echo she just had was a little overkill since the Jan Echo showed normal results. He then told me we didn't have to come back! Her lungs are great and she has officially grown out of the Hypertension :) :) :) She has been demonstrating her strong lungs around here a lot !

Next we saw the GI clinic. The nutrionist was happy to tell us Summer had gained an average of 18 grams per day for the , 12 days. The goal for her is 15-20 grams/day, so she was right on! Summer now weighs 13 lbs 14 1/2 ounces and is on the chart now :) My other kids were always "off" the charts, so this is new for us :) She has been growing consistantly and in proportion. We aren't going to increase her feeds this time, but she has made it to 45 ML's per hour :) The plan is to keep it is easier on her gut that way. Her next visit will be in 2 weeks...keep on growing baby!

Cuddles with sister, Morgan

My beautiful daughters

So happy together!

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